Dear Doves, following is an update from my brother. We are heart broken but not giving up hope!
 
Results are preliminary, but nearly certainly accurate, that dear Auden suffers from an extraordinarily rare genetic disorder known as Alpers disease. Alpers is a rare genetic defect that few carry, and requires 2 carriers as parents, and for affected dna to combine at conception. All of those crazy things happened, and before we even knew he existed, Auden had it. The disorder affects the cells' ability to replicate properly the mitochondrial DNA - which is the "engine" of each cell. So, as the child grows, he outstrips his limited ability to supply energy to his growing and multiplying cells. It is especially cruel, because it allows months or sometimes years of perfectly normal life before it manifests. (On the other hand, we are so grateful we had 9 months of perfectly normal babyhood in which to enjoy him, and wouldn't trade a day of that.) Little Auden was growing so rapidly and potently, that his cells couldn't keep up the pace. It affects the brain first because that's where most of the electrical energy in the body is needed. It is progressive, largely untreatable and fatal. Prognosis is from days to maybe a few years. Unless the seizures abate, it is probably very short term for Auden who may have already suffered too much brain damage to stabilize.