Sarah's symptoms sound much like mine in the long phase when I was not
diagnosed with anything other than anemia. Then I was dx'd with MS by
virtue of MRI of the brain and visual tests which are easy to do, such
as Visual Evoked Response and Visual Fields. I do have demyelinization
of the brain, and an MRI certainly could be done on Sarah, on both
brain and spine, to ascertain if sclera are developing there.However, my MS dx may or may not be right, and Sarah's problem could be
elsewhere. I have Porphyria, dx'd later, which can have symptoms like
MS. Usually a young girl having Porphyria would have some gastric
pain, but not always. So it sounds like Sarah has some neurological
ailment, as yet undiagnosed. There are other neuro ailments which can
cause similar symptoms, including Sjogren's Syndrome.However, intense spiritual experience can cause distortion of the
nervous system, especially if there is an underlying weakness which
might later be dx'd as MS, Sjogren's, Porphyria, or another ailment
with neurological effects. Perhaps Sarah should be encouraged to back
off from dreaming. I know one cannot stop the dreams, as they come
from the Holy Spirit, but possibly she should request that the Spirit
let her rest, now that she has had such amazing dreams, shared them
with you and us and others, and has wonderful memories of visionary
experience to help her in trying times. She is approaching puberty,
when the neuro-endocrine system can become unbalanced even in those
without a "disease". Time to rest and have lower-keyed experience with
the Holy Spirit for a while?I too have a positive Epstein-Barr titre, but so do about 86% of all
Americans. It is almost ubiquitous. The causes of MS have been
speculated upon for a long time, and the bottom line may be that the
causes are many. Not necessarily Epstein-Barr.If there is a dx of MS for her, or even suspected diagnosis, I
recommend the Swank MS diet, which I've been on for twenty years. I
was a patient of Dr. Swank. His books used to be in most libraries,
and certainly can be found or ordered in bookstores. It is a healthy
diet for almost anyone.Prayers for Sarah.
Mariel